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Spinal Muscular Atrophy  UK

"Help for today, Hope for tomorrow"

Here is a brief summary of what the charity does - taken from their website.

Information and Support

“Our small, experienced support services team offers emotional support, practical advice and guidance to anyone affected by any form of SMA."

Research

“We are active advocates for access to new treatments, working hard to represent the views of individuals and families to regulatory authorities. We also fund and facilitate initiatives that improve the management of the condition and further advance understanding of its causes and potential treatments."

Fundraising:

“We offer fundraising support to anyone wanting to raise funds for SMA UK. Please contact the team by calling 01789 267 520 or by emailing fundraising@smauk.org.uk”

If you would like to make a donation, you can do so on

 For further information on the charity click on

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